Friday, April 21, 2017

Biography Elsie Pleasant

            I was born with neurosyphillis a disease which has left me with very harsh disabilities, I have a very hard time learning, I cannot hear and cannot speak and from time to time I have epileptic seizures. I am the oldest daughter of Henrietta and David lacks. I was sent to the crownsville hospital for the negro insane, with the diagnosis of "Idiocy". My mother was diagnosed with cancer and was sent into the hospital, they took samples from her tumor, and for some reason they say her cells are special, because they infinitely multiply, this also made her tumor horrible. The last time she saw me she was very sad, but happy to see me I guess. In my opinion my siblings should have gotten some payment or compensation for our mother, because she is special, but we are all poor and most of us are in deep poverty, which we were born into.

Tweets Elsie Pleasant

1. Born with neurosyphillis, a disease which will harm me for life.
2. Moved to crownsville hospital for the negro insane, no longer have my mom with me😢
3. Well, my mother now visits me every week, so I'm super happy about that
4. I feel like my mother is not doing well, she seems to be in a bad place...
5. My mother came to visit me today, she is looking horrible, hope she will live.
6. I have seizures as well, but that of my mother was as described by emmet "she was possessed by the devil of pain itself" (137)
7. My mother was really happy to see me today, much more than normal.
8. "What she didn't know was that no one would ever meet Elsie again" (135), this makes me sad.
9. I feel lonely, no one has come to see me in weeks.
10. Heard news that my mother has passed away, cancer is really serious. RIP
11. Heard that my mothers cells are used everywhere in the world for research, hopefully no one has to suffer from cancer again from this.

12. Wish we (Henrietta's children) had got some compensation for the use of all her cells.
13. Wish she could just come back, I miss her so much. She had such a giving heart, but no one gave back to her. - in response to Rebecca skloot's tweet "isn't it disappointing to see how Henrietta's family has been torn apart?"
14. Her "immoral" cells may save many lives in the world, and the research will make the immortal cells one of the most important discoveries. In reply to Rebecca skloot -"Henrietta's immortal cells should be called immoral cells"
15. Hungry is an understatement. We were starving and when She had to send me to the hospital, she could not keep us all anymore. In response to Henrietta lacks tweet -“Henrietta’s children grew up hungry” (Skloot, 283) It's hard to hear about what happened to my family after all this
16. My mother will never be forgotten. people.com/human-interest…


The tweets I made in the character of Lucille Elsie Pleasant, the daughter of Henrietta lacks, at first had little character. One of the challenges with this character and giving them a personality was that she had severe disabilities, such as problems learning, deafness, not being able to speak, and epilepsy. One problem I had when making tweets was that I had to speak in the tone of the character, but there was no tone as she does not say anything in the story since she cannot talk, this also made it very difficult to find quotes in the book so for the quoted tweets I found statements from other characters and responded to them in the tweet. Another problem was that my character was not very involved in the story and did not have explicitly stated opinions on her mother and what they are using her immortal cells for. When I responded to others, I had to try put myself in Elsie's shoes and come to my own conclusions on their opinion on Henrietta's cells, so when I replied to skloot I would have a ground to hold in my responses.

Response to David Korn by Elsie lacks

“I think people are morally obligated to allow their bits and pieces to be used to advance knowledge to help others. Since everybody benefits, everybody can accept the small risks of having their tissue scraps used in research.” -David Korn

        In my opinion this is not fair. A person is still a person and they have the right to keep their body in tact and not have its "bits and pieces" used. People should not be "morally obliged" to give their body parts away to science, even if it is for the better of a larger population. I think it's okay to allow researchers to use your parts to research on, however this has to be done with the consent of whomever they are taking it from. In certain cases like that of my mother, there is not reason why anyone should have taken her cells and tissue from her, since she did not know they were going to take any, nor were they're compensations made to anyone in the family, her excluded. Therefore I believe this statement to be false.
My name is Zakariyya Lacks, but I used to be called Joe. My mother is, or was, Henrietta Lacks, but everybody in science calls her HeLa. Mama's cells were stolen from her and used to do many amazing things, like cure cancer, because they just keep on living. Mama's cells never die. And scientists and the doctors down there at John's Hopkins have made tons of money off my mama's cells. They claim they haven't made any money, but I sure as hell don't believe it. Now all of us Lackes are very happy that HeLa has been able to help so many people, but why should her own kin be forced to live without any healthcare? Any kind of doctors? Living less than paycheck to paycheck and worse off than when she died? Everybody seem to be benefiting from Henrietta except us. Maybe people should allow science to use their "bits and pieces", but isn't the key word their allow? My mother never "allowed" them to take a part of her body. She was a poor black woman with cancer and no consent. Those cells belong to my mother and my family, our family. Why should we suffer when HeLa produces so much wealth? "Everybody benefits" he says. Wrong. Everybody but US. Some people are benefiting more than others financially. And that's not fair. Deborah's husband said, “Everybody’s received some compensation but them, and that was they MOTHER,” (432). Yes, use our human scraps for research, but ask first and make sure the people you're benefiting from aren't being left with none.
My family had been without answers for too long. While everybody was out there benefiting and making such scientific progress, the Lackes were kept in the dark. I didn't know hardly nothing until Miss Rebecca Skloot came and wrote her book. My sister said, "“The thing I care about is, you gotta find out what happened to my mother and my sister, cause I need to know," (Skloot 448). Isn't that wrong? That it took us 50 some odd years to learn about what happened to our mother, wife, sister, friend? All we wanted was to know the truth, but instead we were used by hundreds of reporters to sell stories of our information for money we'd never see. I'm not greedy, I'm not, but I just don't think it's unfair.

Wednesday, April 19, 2017

Dr. Geroge Gey Twitts

17) I am glad that Henrietta's "cells that were taken for cancer research 62 years ago without her knowledge and are now used in laboratories worldwide will no longer be free to use without her grandchildren's permission " 

Read more: http://www.dailymail.co.uk/news/article-2386617/Henrietta-Lacks-Cells-taken-cancer-research-62-years-ago-longer-free-use-grandchildrens-permission.html#ixzz4ekXBQsaD 

#NHSHerietta # Rights

16) #NHSHenrietta check it out, this YouTube video did some nice work about talking about my life. So impressed by that. (link: https://youtu.be/ch-PQAW1lHA) youtu.be/ch-PQAW1lHA


15) #RUMOR #NHSHenrietta Just like Rebecca said, I never ever made money off of HeLa! #HeLa


14) Thank you,my doctors for writing an article about the history of HeLa in order to pay my homage #NHSHenrietta and mentioned @HenriettaLacks3



13) #cancer Life will die, but knowledge won't. #NHSHenrietta #HeLa


12) #NHSHenrietta #lovelife @Margaret_Gey Dear, it is time to give credit to Henrietta. The respectful lay deserve that. #HeLa


11) #NHSHenrietta #cancersurvivor wanna be one of them and get back to work...



10) #NHSHenrietta Please, I beg you, my fellow colleagues, take the cells immortal from me as samples.


Response  @Margaret_Gey
My dear, thank you so much for your effort.

Response to @marykubicekNHS
Thank you for still remebering me.

Response to @HenriettaLacks3
Do u feel better? I am Dr.Gey who visit u in hospital today. Hope u will feel better.


9) I told Henietta her cells were going to “help save the lives of countless people.” today. Let's bless this tough lady🙏🏻 @HenriettaLacks3#NHSHenrietta#cancer


8) Thankful for the TV show in Baltimore to give me a chance to give the audience an “overview of cell structure and cancer.”#NHSHenrietta


7) "Henrietta’s cells double in size every morning!!!!!!!!!" That's so impressing!!! Let's see how it will go.#NHSHenrietta


6) Just take a moment to enjoy my roller-tube culturing technique here. Bravo! #NHSHenrietta


5) 😕Oh god, my wife hired an woman again to clean the lab...is that because she is a surgical nurse? #nurselife



4) @marykubicekNHS please explain to me why you seems unenthusiastic today after I gave u Henrietta's cell.



3) GOT SOME FANTASTIC TISSUE from Dr. Lawrence Wharton Jr today! Everything is on the right track.



2) “In 1943, a group of researchers had done so with mouse cell”!I definitely will start my hand on it. @richard_telinde#life



 Response to @richard_telinde
Yah, sure. I will email you my free time, and you can come to my lab.


1) #NHSHenrietta Ultimate goal: to grow the first immortal human cells, ones which would divide forever.


Reflection:
Because there are not many saying from Gey that what he was thinking about, I add some personality on him. As the result, I turn him become a person who did not care about whether give the credit to Henrietta or not at first until a person who would like to share this honor with her. However, from the anger of Henrietta's family, I sincerely feel the importance of being ethically right. Every researcher or scientist are not only researcher or scientist, the most significantly, they are all human being. Therefore, taking others cell without getting the consent from them or crediting them will not only hurt their families feeling, but also betray the rule as a person. What my character did remind me the seriousness of doing citation. Sometimes, I will be too lazy to put all the citation, however, after reading this book, I realize that citation is a way you can show your respect and thanks to the author.

Work Cited:
 Skloot, Rebecca. The Immortal Life of Henrietta Lacks. New York: Broadway, 2017. Print.
 "Geroge Gey", Marina Fishman, https://youtu.be/ch-PQAW1lHA, 02/28/16 "http://www.dailymail.co.uk/news/article-2386617/Henrietta-Lacks-Cells-taken-cancer-research-62-years-ago-longer-free-use-grandchildrens-permission.html, Youtube "woman's cells that were taken for cancer research 62 years ago without her knowledge and are now used in laboratories worldwide will no longer be free to use without her grandchildren's permission", Reuter Reporter, 08/07/2013,http://www.dailymail.co.uk/news/article-2386617/Henrietta-Lacks-Cells-taken-cancer-research-62-years-ago-longer-free-use-grandchildrens-permission.html, dailymails .

Deborah Lacks

Biography

Hi, I am Deborah Lacks. I am the only surviving daughter and the fourth child of Day and Henrietta. I had a horrible childhood experience because I was abused by her cousin Galen’s wife, Ethel. After my mom’s death, my nightmares continued after I moved to live with my brother Lawrence since Galen offends me continuously.

I do proud of my mom’s cells that have been greatly contributed to the field of medical science, resulting in major medical advances. For example, it is vital for developing the polio vaccine, cloning, gene mapping, and more. However, I am so disappointed about the fact that her cells were taken without her consent. I did not know all the informations about my mom’s cells until I heard from Bobbette. She told our family that "Part of your mother, it's alive!" (450) We are all confused at that moment, but with excitement.

I believe that innumerable people’s cells are treated as my mother’s for doing research and getting some profits without their consent. But how can only my mom’s HeLa cases open to the public and get spread so fast in the world. Some people told me that it should be accounted for racial issues, since my mom are black farmer. However, I think that tell the truth about my mother is more important than that because it is really hard to hear truth around people nowadays, especially in medical field. Because lots of scientists want to make more profits. Sadly, at that time, “the cultures were shared freely, without compensation”(579) , so our family did not get any financial compensation from the HeLa cells.

I had a hard time with my stroke during the time that I am seeking the truth of my mom’s cells, which cause me to have anxiety. I know "All this stuff I'm learning,' she said, 'it make me realize that I did have a mother, and all the tragedy she went through. It hurts but I wanna know more, just like I wanna know about my sister. It make me feel closer to them, but I do miss them. I wish they were here." (727) It seems like I am a positive person, but my inner world are extremely vulnerable and negative. I just want to show people that I am a tough women who will never give up finding the truth f my mom’s cells. That’s how determined I am.




Tweet

1.What? My mom’s cells are still alive? What on earth her cells had done for science? #NHSHenrietta #LivingCell#Life Science#ScienceResearch

2.I am still alive! Big thanks to my grandson Davon for smacking me while I am having a stroke.#NHSHenrietta#Stroke#Gratitude


3.What’s the real benefits from my mother’s cell? Helping people or for other profits?#NHSHenrietta

4.How can Hopkins's physicians do research on my mom’s cells without my family’s permission?#NHSHenrietta #theDeclarationofHelsinki #ethics

5.How many more people’s cells are treated as my mother’s #NHSHenrietta #consent #woe

6.It’s impossible for me to donate my mother’s bible. That’s the only thing I have from her.#NHSHenrietta

7.Are you kidding me? “The Supreme Court... removed, with or without consent, a person no longer owns those tissues.”(836)#NHSHenrietta #ethic


9.I still wondering “Who gave my mother medical records to a reporter?” Why is it so hard to figure it out?#NHSHenrietta

10.Writing the truth about my mother is more important than racial issues. #NHSHenrietta #morality #racism

11.I cannot believe that my mom's cells are so beneficial!!!#NHSHenrietta
Five ways Henrietta Lacks changed medical science http://bit.ly/2ouYurE  



Image of stained HeLa cells


12.Researchers should really reflect on the ethics behind my mother's story.#NHSHenrietta
     Below are the Trailer of The Immortal Life of Henrietta Lacks from HBO!
     (Henrietta Lacks' cells led to many important breakthroughs in biomedical research.      
     However, ethics laws were..https://www.youtube.com/watch?v=X-jxEX1XQpY)


13.That’s how HeLa cells look like.#NHSHenrietta
#HeLaCells have been used in the study of haemophilia! Henrietta Lacks continues to live on, thank God for the Lacks family. Image from Wiki. 


Cultured HeLa Cells



14.Hope my brothers can always think positively. “If you gonna go into history, you can’t do it with a hate attitude.”(701)#NHSHenrietta
15. @LacksSonnyYeah, I remember that period with our eldest brother. I don't know what happened to our mother. She seemed to be gone forever.#NHSHenrietta

16.@LacksSonnyBrother, I know how you feel about HeLa. This was not what I’d expected as well. Things are getting too complicated now.#NHSHenrietta #HeLa

17. @r_sklootYeah, that's what I always tell to my brothers. We have to hold a positive attitude though we never forget about our mother.#NHSHenrietta


18.We want compensation for our mom’s cells#NHSHenrietta


Reflection on Tweet

I tried to present the true character of Deborah Lacks, who cares a lot about her mother and never give up discovering her mom’s life throughout my tweets. As you can see, my tweets show the discovery of HeLa, ethics behind the cells, informed consent and racism. In addition, it shows Deborah always wants to know more about her mother and the truth of her mother. I replied to my character’s brother and the author’s tweet to show the complexity of Henrietta’s story as well as being a positive person. I intentionally added some images about HeLa, video clips of the general view of the story and an article about compensation for immoral behaviours.



Questions:

What’s your point view toward the arguments against giving people legal ownership of their tissues?

I do not agree with the quote from David Korn, vice provost for research at Harvard University. Though donating either your cells or organs will greatly benefit both patients and researchers, without getting consent from people themselves or their family members will result in violating people’s own freewill, the ability to choose what they want to do. In this case, people’s rights are offended instead of being protected. My mom’s story can be a great example for that. If we do not give people legal ownership of their tissues, who knows what will happen to their tissues? Water are too deep nowadays, people try to hide their real actions and purposes in front of public for getting more profits. Yet, they should really reflect on themselves whether their behaviour is ethical or not. All those phenomenons can be explained by the the corruption of government nowadays because they all want to maximize profits through shortcuts. Sadly, they forget to care about our feelings as citizens. There are some ways to change the case. Government should try to promote more incentives on all the citizens, like increasing poor people’s living standard and try to provide them free health care if they reach an agreement for donation. Thus, they will know that donate their own cells or organs after they die will greatly contribute to science research project, saving many people’s lives as well as gaining personally benefits from government. In this case, it will be a win-win relationship. Government should really take some actions on the policy to improve country as whole.



Work Cited
HBO. "The Immortal Life of Henrietta Lacks: Official Trailer (HBO)." YouTube. YouTube, 15 Mar. 2017. Web. 18 Apr. 2017.
Image "HeLa." Wikipedia. Wikimedia Foundation, 13 Apr. 2017. Web. 18 Apr. 2017.
McDaniels, Andrea K. "Henrietta Lacks's Family Wants Compensation for Her Cells." The Washington Post. WP Company, 14 Feb. 2017. Web. 18 Apr. 2017.
Samuel, Leah, and Stat. "5 Ways Henrietta Lacks Changed Medical Science." Scientific American. © 2017 SCIENTIFIC AMERICAN, A DIVISION OF NATURE AMERICA, INC. 14 Apr. 2017. Web. 18 Apr. 2017.

Skloot, Rebecca. The Immortal Life of Henrietta Lacks. New York: Broadway, 2017. Print.

Dr. Geroge Gey 2017 biography

Hi everyone, my name is George Gey, Hopkins’ head of tissue culture research. I was raised in Pittsburgh, where my family lived in poverty.  Using this process, Gey, along with his mentor Warren Lewis, was able to film the incredibly slow process of cell growth. My wife's name is Margaret Gey. She is a nurse, and my colleague as well. "Margaret was cautious and stable, the backbone of the lab,". I had been attempting to grow cancer cells outside the human body since I became a scientist. The purpose of that is to determine cancer’s cause and find a cure. My ultimate goal was to grow the first immortal human cells, ones which would divide forever.

Therefore, I decided to make a deal with TeLinde: He would provide me with cervical cancer tissue, and I response for attempting to grow it. Although I made a deal wi him, I was still unconfident towards the experiment, since in all the previous history, scientists did not know what exactly cells needed to survive, or how to supply them with those nutrients.

I worked in Hopkins’basement, and employed a lab assistant who named Mary Kubicek, a young smart lady, to sleep by the camera at night to ensure that it was remaining stable. Using this process, I was able to film the incredibly slow process of cell growth.
Interestingly, because of the problem of contamination, Because Bacteria and multiple other microorganisms exist everywhere, my wife,  Margaret, had become obsessed with cleanliness-she even hired a woman who named Minnie to clean the glassware used in the lab-.

Life will never betray those people who puts efforts on their work. Two days after Henrietta's cells were sent to my home, when Mary checks on Henrietta’s cells, she founds out that small cell growths at the bottom of each tube. In one the following morning,  when I walked in the laboratory, while Mary was crushing towards me,  she was shouting as the same time:" '"Henrietta’s cells double in size every morning' !" I told Mary keep putting her eyes on it, because those cells could die at any time. Surprisingly, they didn't.
I was so excited about that, so i made a announcement about my lab may have created the world’s first immortal human cell line.

Since sharing is the best way to spread knowledge, at the same time, is a stimulation of development, I sent the samples to every scientist  who wanted them for cancer research for free.
As more scientist receive the cell sample, I start to question myself: should I credit Henrietta or no. This had been a huge question around my mind each time when I walked in my laboratory and looked at those fast-growing samples.

On one hand, immortal cells has been a distasteful, and even largely ignored area, so it didn't matter if I credit her or not. No one will notice that. But from the morally ethical side, it is immortal to take one's cell and take advantage from it. However, if I didn't do that, it will not hurt me. Henrietta probably was going to be happy when she hear from me that thousand of life would be saved by her contribution. I convinced myself.

Although I had decided not to give credit to her, I just felt guilty when I saw them. Finally, I decided to hold her name back firstly.

Years after, Henrietta was sick again; I even heard from my wife that her neighbors even could hear her cries from a block away by the pain. Therefore, she got sent to my hospital on August 8th. What a great chance to start my research again! So I ordered the doctor to take more cells from her cervix. Unfortunately, according to the result I got from her cervix cell, since her body got polluted by the toxins, her cells dead almost immediately. No matter how much painkiller we gave to her, they didn't work. As the result, I went to visit this poor but tough lady. My colleagues, Laure Aurelian , went to visit her as well. I standed in front of her bed, sit down ver slowly, and picked up her hand. I could tell by her eyes that she was suffering, but tough as her, she didn't complain about anything. I felt very guilty about my decision of didn't give credit to her, so I moved my sight to those medicine bottles next to her bed. I asked myself seriously: shouldn't this strong lady deserve the credit? The answer was firm: Yes. But I probably should not put that out right now, since there is going to too much rumors going on, thus I can not focus on my research. I stand up again, gently put her delicate hand back in the quilt, looked at her into her eyes, and said:" you cells were going to 'help save the lives of countless people' ". After saying that sentence, I had no courage to look at her reaction, and walked, more detail, escaped from her room.

Months later, I sadly heard the new of her death. I knew this is my last chance to do the reserch on her, so I asked the doctor if they can perform an autopsy to see if other cells in her body will grow like HeLa. By the agreement from Day, they were able to do so. While we were gathering sample, I skimmed Mary was looking at her red toenail, and then, her facial expression became very weird, but I didn't know why.

There were years after I did my first experiment, many of my fellow colleagues asked me to publish my paper, so I can get credit from it. But I didn't want to. I always told them that I was too busy, however, the guilt from my heart stopped me by getting all of the credit.  After prodding from Mary and my wife, I finally decided to wrote a short abstract but not a long paper. Subsequently, my wife began to simply writing and submitting my work for me. Although I told her I did not want to and I did not deserve all the credit, she always told me that the early I published those paper, the earlier human being can solve the question of cancer. I didn't have anything to say about her response.

In the end, I became the people who suffered by the cancer. That was the most difficult period of time I had ever had in my life. The endless pain and the countless medicines dragged me crazy. The only I want was to get back to my lab and continue my research. However, I could not. So I asked my college to take my cells as samples, but they refused me.

I could not really remember what happened afterwards. The only thing I remembered was the pain crush towards me. Finally, I felt like every single second could be my last moment in this world. I have so many things haven't done yet; I have so many regrets that want to correct them. So in the end of my life, what actually something I can do as a scientist, or human being? I asked my wife came to my bed, and told her that after I died, credited Henrietta as the contributor of the HeLa cells, so she and her family would be happy to see that, and that is the only thing I could do.

Life will end, but science will stay forever.

The End.